Put a glass down on the table? Better assume I will swipe it off the table if I don’t know it’s there and it’s in my path. Put something down in my apartment? Better put it in like one or two spots or I will NEVER find it. Put something away in the wrong spot? Yeah, it’ll stay there until you move it again probably.
These are just common things I deal with on a daily basis that can wear me down. There are SO many nuances to daily living and interacting with someone with a serious visual impairment, and if you know what to do it really makes their life so much easier.
I can see a little bit out of this portion, but not out of this portion, and this portion is so-so but my brain tries to fill in the missing pieces, oh but pretty much all these places are blurry, and that light?? Yeah that bothers me.. But nope not that light over there.
There are also so many nuances of understanding someone’s vision loss, more specifically how that person’s type of vision loss or condition affects that particular person.
But I’m so lucky.. to have a boyfriend that just GETS it. He knows exactly where to put things, exactly how to help me, exactly when I will be able to read something and when I won’t, exactly how much light and what kinds of light bothers my eyes.. He just really gets it.. And he has lived with it for so long he doesn’t really think about it. And NEVER complains about it. He literally has never once complained about my vision loss but instead embraces it as part of who I am. I’m just so lucky.
This post was partially sparked because I’ve been realizing how much my vision is degenerating recently. I have a lot of amazing friends who help me and love me. However, I was thinking.. Who has known me since I was diagnosed that I still talk to? And the only person (other than family), is Steven. Now I have another family friend who has, but we didn’t really reconnect until recently. And, Steven and I weren’t close at the beginning. But he literally has been here for me through “all the tough parts” of my vision loss and has seen me go through all the transitions of no cane to cane to guide dog, reading print just fine, to enlarging everything, etc.
What a wonderful boyfriend he is. And these people in all our lives, who just get us and love us and we can just relax around them.. They are such a blessing. I have to work so hard (sometimes I feel SO much harder than my sighted peers) to do my job or just function, that it’s nice when I don’t have to explain myself or my needs. Now, I’m great at that, but it’s just nice when I don’t have to. For example, when I go to a casual gathering or party, he just naturally helps me figure out what things are, gives me excellent directions to find things, and if I don’t want it to be obvious I’m having trouble, he just helps me be subtle.