Surprised by Disability


This is a long post.. however it touches on many things that a person with blindness worries about, especially adjustment to disability. I encourage you to read it when you have about 15 minutes. I’ll share more about my current adjustment to my disability later.

On the Blink

This essay appeared in the Winter 2013 issue of Narrative Inquiry in Bioethics, a journal published by Johns Hopkins University. The issue’s theme was “living with the label ‘disability.'” As the issue is no longer in print, I am sharing the essay here.

*   *   *

Today I am meeting Diana, one of my young blind students, for coffee. Soon she will enroll in our summer program that teaches blind teenagers independent living skills and self-advocacy. Her teachers explain that she has prepared questions for me.

“So,” Diana begins, as we follow the uneven sidewalk toward the restaurant. “What would you do if you wanted to go outside without your sunglasses?”

I can guess why she poses this question, but I conceal my theory for now. Instead, I smile and adjust the large, dark sunglasses that fit over my regular glasses. “Why would I want to do that?”

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Jessica N and Makiko

Jessica is a proud Texan. She graduated in 2014 with her Master of Science in Rehabilitation Counseling and is now employed. She is visually impaired and has a retinal disease, Retinitis Pigmentosa. Originally Jessica started blogging about everything from being diagnosed with the disease to where she is now, almost 9 years later. Then, Jessica went to Guide Dogs for the Blind and was blessed with Makiko, her new guide dog. Now, her blog "The Way Eye See The World" is about everything related to visual impairments, including guide dogs.

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