“You don’t know what you’ve got, until it’s gone.”


This quote came to mind this evening. The other day I realized my vision has been degenerating even more. Things that I know I could see not too long ago (like a month or two maybe?) I can’t see now. I could sometimes follow my boyfriend’s video games when he played with a friend but now I know I’m missing way too much visually because I can’t follow them. It gets really frustrating. I knew I was “legally blind” and thought I was pretty blind but then when you lose even more vision you realize that you weren’t as blind as you thought, or really you have a lot more vision that you could lose. I’m adapting to the loss of course, many thanks to my wonderful guide for helping me with that, but it’s still one of those things that you go “Humph,” about. With RP, you don’t lose your vision all at once and you don’t have moments where you’re like “Yep, I JUST lost some vision,” you have moments in life when you realize that you can’t seem something or you’re having more trouble with something that you know you used to be able to do or see just fine.

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Jessica N and Makiko

Jessica is a proud Texan. She graduated in 2014 with her Master of Science in Rehabilitation Counseling and is now employed. She is visually impaired and has a retinal disease, Retinitis Pigmentosa. Originally Jessica started blogging about everything from being diagnosed with the disease to where she is now, almost 9 years later. Then, Jessica went to Guide Dogs for the Blind and was blessed with Makiko, her new guide dog. Now, her blog "The Way Eye See The World" is about everything related to visual impairments, including guide dogs.

10 thoughts on ““You don’t know what you’ve got, until it’s gone.””

  1. My prayers for strength and God’s assistance go out to you Jessica! You exhibit the acceptance of your journey with graciousness and patience, and when you write about acknowledgement of another level of vision loss I hear the inevitable sadness. What is remarkable and inspiring is that you still find thankfulness in your every day walk, and I appreciate your example!

    1. Aw, thank you Mrs. Dragan! Your comments are always beautifully worded and very inspirational. I am so grateful to have you and your family in my life.

    1. Hahah. I haven’t played LoL in a little while. I imagine I can still play, it will just have an additional level of challenge.

      1. do you use colorblind mode? because i do. i like the colors better.

        also, red.
        colorblind mode doesn’t really use red much.

        p.s. please don’t hurt me ❤

      2. Haha. You’re lucky you’re my best friend! I haven’t used colorblind mode but will have to check that out. See THIS is why I keep you around 🙂

        -Jess

    1. I’m glad to hear that my post did that. I try to be as open as possible with my blogs and with advocating so people will learn and grow from it.

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