Yep! That is indeed what my boyfriend said to me today. It made me chuckle. He makes jokes about my blindness, as do I, and it’s fun that way. It helps make some situations that are less than fun, more fun! This whole blog is about my blindness, so I’m sure you’ve figured that part out. I have never been able to really smell things but some people close to me don’t believe me. Really, I LOVE chocolate but I would never be able to identify it by smell, nor a rose, nor a lot of the most common smells. I just can’t smell them and I don’t know why.
Recently I have had something going on with my left ear where each day I’ve been able to hear a little less and I’ve been in a little more pain. I went to the doctor for this about a month ago and they gave me some ear drops and instructions and said if it didn’t clear up in a few weeks to go to an ENT. Well, I scheduled that appointment for July 2nd. That was the best appointment around my school schedule. However, today it started KILLING me and I couldn’t hear almost anything at all out of that ear.
Okay so imagine this, I’m dizzy because of what is going on with my ear, I can’t ear anything out of my left ear almost, and I can’t see very well. Navigating was pretty difficult, even with Makiko because I’m just not used to it. We went to check out some apartments for a friend and I just felt so off and weird and it was not a good feeling. However, it made me kind of realize what it would be like for somebody with Usher Syndrome. They have hearing loss in addition to RP. They have to learn to navigate, and especially use a guide dog, in a whole different way.
I went back to my parent’s house soon after that. I HATE things being put in my ears or touching my ears. (Notice no pierced ears). I just hate it! The only thing I can stand touching my ears is my hair, obviously, and glasses and then when somebody hugs me or kisses me I’m okay with that touching. But otherwise, no way Jose! So Steven had to be with me and help today as my Mom put the awful ear drops into my ear that had to then soak there and then she had to use a little blue thing to squirt water in my ear in a very precise location at high power. Oh it was awful! However after medicine, soak, medicine, soak.. my ear felt so much better and I could hear again.. what a relief!
I’m going to the ENT doctor in a few weeks still to see if they can figure out more of what’s going on and see if everything is okay. The referral is only for the ear but I’m of course going to ask them about the nose too. Many of you who have been following my blog for awhile may remember that one of the geneticists told my Mom I may have an unknown genetic syndrome that tie a lot of my body’s “abnormalities” together. I can’t help but wonder if my lack of smell is one of them…