Lots has been going on in my life, including a lot with my vision. I’ve noticed over the past couple weeks that I can’t see as well as I used to. I attributed this to peripheral vision loss because I know that it has happened. Well, I went to my regular Retina Specialist and he said my central vision has gotten a lot worse. So, we are trying to figure out why. It could be CME, it could be just my RP (but central usually goes at end-stage), or it could be something else. Who knows! I also have cataracts but he says they aren’t bad enough to cause this vision change. So I am getting referred to several different places to try and figure this out. That’s frustrating.
What else is frustrating? I feel that what is frustrating me even more is I KNOW, not just think.. I KNOW my peripheral vision is decreasing to but the doctor was so focussed on the my central vision loss that he wouldn’t test my peripheral. And that’s something I really wanted to know and I feel I need to know. I don’t know what ‘legal blindness’ feels or looks like, but from those I have talked to and what I have read, I really feel like I am legally blind. But that doesn’t matter until it’s documented.. grr. I was so close to legal blindness before, I just have to be now. One doc told me at one point I was right at 21 degrees, and 20 is legal blindness but he now isn’t sure.
Last source of frustration for me lately is regarding getting a guide dog. I am very confident in my cane skills thanks to my amazing O&M Instructor, Micha. She actually has her own business now (Mobility & Moore)! She does wonders in minimal time and I’m always very impressed. She helped me learn to navigate the bus system like no other. I am having a little trouble on crossing a few certain streets but overall, I think I am very good with crossing streets, and everything else. But there is still something missing and I have been recommended to get a guide dog by several professionals. Problem is.. most Guide Dog Schools require you to be legally blind, which I am not. So I’m hoping to get that taken care of soon, but who knows.
Frustration is amiss, my friends.